REQUEST A REPRESENTATIVE Hear from Wendy, Katie, and Tyler about their experiences with LUMRYZ
Learn how to identify patients to switch and start on LUMRYZ with these real treatment examples
Patients were compensated by Avadel Pharmaceuticals to share their stories. Individual results may vary.
Select an option below to explore more from Wendy, Katie, and Tyler about their treatment journeys
NT1, narcolepsy type 1; NT2, narcolepsy type 2.
Meet Wendy
living with NT1, switched to LUMRYZ
Wendy’s treatment journey
Wendy’s first cataplexy attack
"I was laughing and jumping on the bed, and then dropped to the floor. After I could move again, I told my mother. She thought I was making it up.”
Wendy is told her symptoms are psychosomatic
"I spent a week in the hospital after a cataplexy attack and was told nothing was wrong with me. I thought everybody was right and I knew nothing.”
Wendy is diagnosed with narcolepsy
"After 25 years and so many misdiagnoses, I was told I had narcolepsy and was put on a stimulant to treat my EDS.”
Wendy struggles to find the right treatment regimen
"Every 6 months we would raise the dose or switch to another stimulant. They helped me stay awake—but staying awake meant being in a fog all the time. And I was still having symptoms of cataplexy.”
Wendy starts researching oxybate therapies
Wendy starts on twice-nightly sodium oxybate
"My doctor prescribed a twice-nightly oxybate. I woke up one day after taking it and for the first time in 8 years, I didn’t have a cataplexy spell. I wasn’t as sleepy. I was awake enough to attend my college classes. I finished my degree.”
Wendy faces challenges due to EDS
"I kept struggling with the second dose and feeling sleepy the next day. Employers wouldn’t recognize my hard work because I took so many naps. They thought I was lazy.”
Wendy joins the LUMRYZ clinical trial
"After having trouble managing the middle-of-the-night dose for so long, I needed another option besides twice-nightly.”
Do you have patients like Wendy who may benefit from switching to—or starting with—once-at-bedtime LUMRYZ?
WENDY TODAY ON LUMRYZ
Since starting once-at-bedtime LUMRYZ, I feel less sleepy and more awake during the day. I can watch movies with my husband and paint without falling asleep and getting paint all over my clothes.
Meet Katie
living with NT2, switched to LUMRYZ
A typical day on twice-nightly oxybates
Katie takes her first dose.
Katie realizes she has slept through her alarm and must decide between a late dose or a skipped dose.
"I had to start crunching numbers, which is not a game you want to play at very early hours."
Late dose
Katie sleeps through her first class so she can be awake for an afternoon lecture. After waking up late, Katie skips breakfast to make it to her next class on time.
"I would say things to myself like, ‘If I skip band, he doesn’t take attendance. So, that won’t affect my grade.
How many absences do I have left in my
other classes?’"
Katie multitasks during class to review the morning coursework she missed.
Skipped dose
Katie intentionally skipped her second dose to ensure she can wake up on time to attend a 9 AM class. However, she worries that not taking a full dose will lead to her struggling to stay awake in her afternoon classes.
"No matter what I do, I’m missing out on something; and once you’re behind, you’re playing a game of catch-up that never ends."
Katie naps in her car instead of attending afternoon classes.
Katie worries about sleeping through her alarm and taking the second dose late again, because she wants to be awake for all of her classes the next day.
"I didn’t tell my doctor about my challenges because I felt ashamed. I thought I was the only one who struggled with twice-nightly dosing. I was scared I would lose access to my treatment if I complained."
How are you maintaining an open dialogue with patients about the potential challenges with taking middle-of-the-night dosing?
KATIE TODAY ON LUMRYZ
Once-at-bedtime LUMRYZ for me means I go to sleep and the only thing I have to think of is what I’m going to be doing the next day. I’m not falling asleep in the morning, so I like to make myself breakfast and drive to class.
Meet Tyler
living with NT1, switched to LUMRYZ
Growing up with narcolepsy
"I was constantly sleepy, and 2 minutes into a basketball game my legs would start feeling like jelly. It was frustrating, because I had been planning to go to college on a sports scholarship.”
"My mom mentioned I would nap while my friends played soccer outside, and that led my doctor to recommend a sleep study.”
"My sleep specialist recommended starting with twice-nightly sodium oxybate. I noticed a difference soon after starting. I didn’t struggle as much to stay awake while reading.”
"My mom had to wake me up every night, or else I wouldn’t get up to take the second dose in the middle of the night as prescribed.”
OF COLLEGE
"When I started college, I had to have a single room so I wasn’t burdening anyone else. But that also meant I had no one to help me take the middle-of-the-night dose.”
"It was a huge relief that my sleep specialist listened to me and heard my challenges with taking twice-nightly dosing so we could explore other options."
Do you have patients like Tyler who may have family members who are impacted by their current treatment regimen?
TYLER TODAY ON LUMRYZ
Since taking once-at-bedtime LUMRYZ, I feel awake when I spend time with
friends and do my homework. My cataplexy attacks have also mitigated, so I’m not focused on my
cataplexy
when I play pick-up games of soccer or basketball.
Once-at-bedtime dosing for me means not relying on someone else to help me wake up in
the
middle of the night to take a second dose—now I have a roommate, and I’m not worried about my alarm clock waking them up every night.